Cystinosis Ireland and Cystinosis Network Europe will host a major international conference on the rare genetic disease, cystinosis, in the Royal Marine Hotel, Dublin, from July 2-4.

The gathering will provide a forum for the cystinosis community to share lived experiences and to hear from experts on the progress being made in developing new treatments.

Among the topics being featured at the conference will be research updates from around the world, including the latest gene therapy developments, more patient-friendly treatments, and the use of AI in research.

There will also be breakout sessions for different age groups and members of the family, such as parents and partners, as well as on aspects of living with cystinosis such as eye health, fertility and following a ketogenic diet.

To register, visit www.cystinosis.ie