The Waterford community is getting behind a fundraiser for an 11-year-old local boy who is non-verbal with multiple diagnoses.
From the age of three and a half years, Dylan Ryan was diagnosed with Autism, a moderate intellectual disability, drug refractory epilepsy, and a mutation of the Deaf 1 gene – Vulto Van Silfhout De Vries syndrome, an extremely rare disorder.
Dylan is the only known person in Ireland to have Vulto Van Silfhout De Vries syndrome. There are roughly only 200 people in the world to have the syndrome.
Dylan's aunt Leanne Edwards and family friend Yvonne Whelan spoke to Maria McCann on 'The Saturday Cafe'.
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