Kilmacthomas woman Sarah Kiely is currently organising a major fundraiser for Dravet Syndrome Ireland.
Her son, Cass, has been diagnosed with the extremely rare epilepsy.
Nicola Kehoe (left) and Sarah Kiely (right).
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Sarah dropped into the WLR studio along with Nicola Kehoe from Tramore, who is Chair of Dravet Syndrome Ireland, to outline more about the condition and the ongoing fundraisers.
To listen to the full interview, click on the image above
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